PCCR Project
About Project
Technical Approach
Security
Collaborative Registry
Data Warehouse
Statistical Models
Collaborators
 
 

 

 
 
 
 
 
 
 
 
 
 
 
 

The Pancreatic Cancer Collaborative Registry (PCCR) is aimed at gathering the PC-related information. The PCCR is designed to help with the standardization of data collection and reporting, and establish an infrastructure where by pooling efforts, resources and studies involving prevention and treatment strategies against PC can be furthered. The majority of the data is to be obtained from and submitted by the subject.

PCCR core data:
  • Date of birth
  • Date of study
  • Age at diagnosis/ age at study
  • Birth country
  • Gender
  • Marital status
  • Race/ethnic
  • Current Ht. & Wt.
  • Usual Wt. at age 20, 50, prior to illness
  • Education highest level completed
  • Tobacco/smoking
  • Alcohol current & past
  • Confirmed index case* (Y/N)
    (*Index case definition: histologically proven ductal adenocarcinoma)
  • Imaging studies done
  • Stage (pathologic & clinical) at diagnosis
  • Resected for pancreatic disease (Y/N)
  • Drugs (NSAIDS, enzymes, insulin, oral hypoglycemics)
  • Diseases & year of diagnosis (diabetes, acute and chronic pancreatitis, asthma, gallstones)
  • Any previous surgery
  • Ever involved in other pancreatic cancer research
  • Previous radiation exposure to abdomen
  • Summary of family history
  • Cooperative trial (Y/N)